"Epidermoid Brain Tumor Society™ recommends treatment from a medical team
with substantial epidermoid and skull base removal experience ."
Epidermoid Brain Tumor Society™(EBTS) provides educational information and support to patients who seek treatment for an epidermoid brain tumor, a rare, benign, slow growing brain tumor that is located in the skull base.Our members world wide realize that treatment of the epidermoid brain tumor by a medical team with extensive experience is critical to the patient's best chance for a successful outcome.To excise the epidermoid brain tumor is to face the most challenging neurosurgery.Therefore with this belief, EBTS advocates criteria in the Treatment section of this website to be used in the selection of medical professionals.
Intracranial epidermoid brain tumors result from inclusion of ectodermal elements during neural tube closure.The Fact webpage supports early history of the earliest diagnosis of the epidermoid brain tumor with documented links.Although congenital, epidermoid brain tumors are usually very slow growing and as such take many years to present, this is not all cases, as many children are presented with the epidermoid brain tumor early in their life.
The epidermoid brain tumors are generally recognized as a benign tumor; however, total resection is often difficult because of the skull base location and the potential impact of surgery in this area on the patient's quality of life.Many epidermoid brain tumor patients with only resected epidermoid brain tumors are left with cranial nerve deficits after surgery.Despite the need for complete excision of the tumor, including the capsule, to avoid a recurrence, total removal may not be possible without inducing severe neurological deficits.The rate of permanent deficits depending on the degree that the tumor adheres to the neurovascular structures, is still relatively high.The recurrence from the residual capsule, dissemination of the tumor, hydrocephalus, seizures, and aseptic meningitis are common problems presented to the patient.Careful observation, employing serial magnetic resonance images, is necessary for incompletely resected epidermoid brain tumors.
Epidermoid Brain Tumor Society™ offers caring support and top notch resources, such as our breaking News from the scientific community.Our web pages provide educational and medical information to help patients, families, and caregivers make informed treatment decisions and to develop strong support systems during every stage of their journey.The surgical outcomes of earlier patients with cerebellopontine angle (CPA) epidermoids, and other locations within the brain stem treated before advanced surgical tools have earned our senior members respect among their peers. EBTS members read their archived stories in Patient Blogs and "Walking the Walk" and admire their determination to persevere after undergoing recurrent epidermoid brain surgery many times.Skull base surgery for the epidermoid brain tumor patient is not a "walk in the park" as we tell our new members; it is one of the most challenging surgeries any patient will ever endure.Spotlighting active members in our Patient Spotlight when their actions motivate is our way of saying, "this patient member is a survivor!"
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